So.. This happened..
bragged talked about my 7.63 mile hike at Potato Creek State Park on Instagram. It got a few likes. I was really proud of myself for accomplishing this because a couple of weeks ago, I never would have made it to the trial head. Here I am, walking almost 8 miles in under four hours.
At some point in the night, I was asleep when it appeared, I received a comment from an Instagram account that I am pretty sure is a troll account. Set to private. Has no posts, has a cartoon profile photo, both follower and follow are set to zero. This screams of either new account or troll account. I am thinking the later.
I can only assume that whomever wrote the comment is someone that felt compelled to get something off their chest but they also like me and didn’t want me to be offended and get unfollowed or blocked. I don’t usually roll that way unless you threaten me or I find out you’re stealing my stuff.
I was so taken back by what it said that I failed to make a screen shot of the comment and since it’s later in the day, I couldn’t even tell you who the author was. I deleted it. It was hurtful and untrue.
What did it say?
Well. This is not verbatim but it basically accused me of not being that sick, in denial and cruel to those who couldn’t do the things that I have been doing I don’t look sick and I shouldn’t tag my photo’s as being part of the Lyme community.
I am a person with a lot of opinions. One of those opinions is that a new patient with Lyme Disease does not need to do an internet search and find nothing positive about what their lives will look like moving forward.
In my personal experience, the very first article that I pulled up mentioned, first thing, is the quality of life being worse than a patient with congestive heart failure ( which I don’t believe ) and that Lyme patients lose everything and commit suicide.
My second thought “you don’t look sick”. Really. That’s the very same complaint that chronic Lyme patients or anyone with an “invisible illness” makes because people say to them “you don’t look sick”.
I don’t look sick? Neither do most of the other people I’ve seen with Lyme.
So, apparently, I have never had a bad moment since before my diagnoses and up until now. Apparently, since I have failed to constantly complain about my condition and post photo after photo to Instagram and on my blog of me looking miserable and pathetic, I must not have it as bad as someone else.
When did this become a competition? Also, this is a weird thing to sit around and compare to someone else. I’m not jealous of anyone receiving meds through an IV etc. Are you jealous that I can ride my bike? Leave the house or are you proud of yourself for being sicker than everyone else?
I was under the impression that we were all in this together and that we were all supposed to support each other. My blog is to discuss my own personal journey and what I am up to and how things are going.
I refuse to allow the experiences of other people to determine my own outcome, especially my own limitations. I certainly won’t take judgements to heart because I made the decision to get out of bed.
Get some exercise haters, you might feel better in a week or two. You might start to feel better. The best thing I could have done for myself was to get out of bed and start forcing myself to exercise.
I literally just read the article on the Lyme Buddies Facebook about patients with Lyme Disease who are doing better after starting physical therapy. Just in case if you want to go and read that. It seems like some people can’t get past anything they read on social media. *gasp* You mean to tell me that exercise might have something to do with feeling better?
I’m not angry about this anymore. Maybe a little bit irritated. It seems to me that living life is a lot more fun than laying in bed and letting it pass by. I started to feel a little off when I was about a mile into this hike but I pushed through and did it anyway. I took my time. I even pulled a tick off my arm. I survived and I was really proud of myself.
I don’t plan on having this thing forever. I know that I will keep a few souvenirs aka the residual affects of this disease for a long time. I am going to do whatever I can to survive and conquer this disease.
Let’s be real here friends and enemies. My frenemies. Being criticized for conquering an illness by people who share the same illness, is the saddest and most pathetic fucking thing I have ever heard.
Really, and to you my dear Troll. Get over yourself. We are in this together. You don’t have to like what I have to say, you don’t even have to like me. I think you should do yourself a favor and reread what I wrote here, and take that to heart.
I hope everyone is having a pleasant day.