It has been two weeks and two days since my visit to the ER.
I attempted to mow my lawn. It’s fairly small in the front and good sized in the back. I managed to mow the easement in the ally by my garage and the back fence. I mowed the front yard. I was so exhausted and felt sick that I just put the mower away and went in the house to lay down for a little while. I just couldn’t do it.
What I have experienced the most is extreme fatigue. For about a week I would describe it as crippling because I have been so weak it has taken every ounce of my being to get through a day.
I go to bed before midnight.I don’t get off work until 10pm. Then I have to pick up my son and drive home. I can’t just go to bed right away. I am up by 6:30am to get my son ready for school. I return home usually by 8:30am. I lay down in bed or on the couch.
I have the best of intentions and set my alarm for 10:30. I have a plan to get up and get some chores done around the house. The alarm goes off. I set it to snooze. I repeat this probably ten times.
I realize that there’s nothing I can do. I am so tired that I have to continue to rest until 12:30 at the latest. I have to get up and get ready for work.
So far, if I rest until 12:30, I can function and give the 110% necessary to be effective at work. I have no choice. I am too important. I have a city full of people, police officers, the fire department and my co-workers all depending on me. I have to be sharp.
So far so good, as long as I sleep.
If I don’t sleep. I feel horrible. My body literally hurts. My brain is foggy. At this point I still have abdominal pain. I have a headache every morning. The joints in my hands are tender. My fingers are swollen. My muscles are twitching a bit.
My eye keeps twitching and it’s driving me nuts. For two reasons. One, it’s annoying. Two, I am convinced that people notice it. It makes me feel a little self conscious.
I’m also doing a lot of research and I know that facial paralysis is part of this game. Bells palsy. I saw a photo of a woman whose eye lid is drooping. I worry that this is the start of that.
At this point, I don’t have enough knowledge to know any better. I am working on it. I keep reminding myself that this is a process and I can’t expect myself to be an expert in a day.
It’s stressing me out.
There is a lot of scary information. Lyme Disease has the potential to really cause a lot of damage. Or I may get lucky with an early diagnoses and I will not have any long term effects.
The shitty thing is knowing that it can really go either way.
I’ve been on the antibiotics for approximately 4 days. I am waiting for the sickness associated with the bacteria dying to begin. The slang term for this is called “Herxing.” Herxing is named from Jarisch-Herxheimer.
The Jarisch-Herxheimer reaction was named after two European dermatologists who were working on treatment for patients with syphilis, which is an infection caused by a spirochaete, similarly to Lyme disease.
Herxing happens when the bacteria die and your body has to deal with the dead cells. It’s like a healing crisis. You basically become ill from this. I am currently researching ways to assist my body with this process.
One way to do this is through detoxification and nutrition. I have started a list of different things that I am going to pick up from the grocery store to help with this.
Lemons to add to my water. Fish oil. Garlic. Ginger tea. Probiotics. Epsom salt to soak my feet in.
I am going to get into supplements and nutrition in a later post. I am not sure how involved I want to get with these things at this point. I don’t know a lot about supplements. I am familiar with the items listed above and I know they won’t kill me. So why not add it to my diet?
It’s almost 1am. I need to be up by 6am. If I don’t get some sleep I am going to pay for it tomorrow. I have to get things done. I have to keep moving. I have to get better.
I just realized I haven’t eaten since lunch. I don’t think the peach I cut up and ate counts as a meal.